The strangest thing about being “Home Alone” is the noises that occur during the night. K*** is away with her sister and niece and R*** is on respite until Friday. Usually, R*** has his computer and TV on all night and you can hear that as a faint background noise. Then there is your partners breathing and other sleep noises, which I won’t go into. But you get used to those sounds as they have become part of the norm. Now, when those noises are not there, you begin to hear the other noises. The noises that you never normally hear or register. Monday night is an example.
I had woken up around 2:30 for some reason and was struggling to get back to sleep. My usual sleep trick of trying to focus on a single thought wasn’t working and I was just laying there, listening. The creak of the floorboards. The passing car. The screech of the owl. The cats fighting down the road. The neighbour taking his dog for a walk (not kidding.) The hum of the refrigerator downstairs. They are all noises which I don’t usually hear. Then just as you start to drift off to sleep, the wind blows and one of the room doors bangs shut. You know what it is, but it shakes you up a bit and you’re back where you started.
Then last night, I was late going to bed (reason below). It was gone midnight when I settled down, but was awake at 4:00 and just dozed until 7:00 when I decided to get up. Couldn’t stay in bed any longer.
Went out last night. Went to the Red Lion in the village. It’s been a long time since I was there on a Tuesday night. Stopped going when I started to get worried how K*** would manage if R*** had a melt-down. But, as I was on my own, I thought ‘why not?’ Tuesday is “Quiz Nite” as they call it, so all the old faces I used to drink with were there. It seemed strange to see them again, as it must be a year since I was last in on a Tuesday. I didn’t do the quiz, as I’m not so good on my own, but it was nice being part of that crowd again. I was thinking as I walked home, that when R*** starts his new respite hours in July, Tuesdays will be one of the days when he is away every week. I think it is time to maybe start the “Quiz Nite” visit again on a more regular basis. Just got to convince K*** that it might just be fun.
Eldest is coming round tonight. He has someone to see and something on with the drama group. He is not taking a big active role in the group this year as he is finding it a little tiring at the moment. So no “Murder Mystery” play and no Pantomime either. The group are still trying to get him to take a part, but he’s insistent that he wants a break this year. They’ll be going on to the pub, so it will be another late night. Then tomorrow, I’m out with my old school friend. But I’ll be driving back, so it may not be a late night.
This is that time of the year, when the Leeds and Reading Festival takes place. These are two of the largest music festivals in the UK, and take place simultaneous over Friday to Sunday. There are usually the same acts appearing at both sites over the three days. I was going to link to festival, but know of old that these links often simply disappear, so I’m going to make do with a couple of images. We live quite close to the site, so we get all the traffic and noise issues. Happily, the organisers seem to have got the traffic problems under control this year, as there has not (yet) been a repeat of the 5 hour tail-backs on some of the approach roads. The noise? Well it all depend on the wind direction. If the wind is in a certain direction, we do get the continuous hum from the motorway so when that happens we do get some of the festival noise, but it’s not been loud enough to notice.
I have been before, back in 2011. The Parish Council of Bramham and Thorner are allocated a number of free ‘Guest’ tickets. These ‘sweetener tickets’ are then sold to genuine residents at an extremely discounted rate, with the funds going to local projects. Every year since 2011, I’ve thought about going again, but at the last minute, I back down. I don’t think K*** would enjoy it and I wouldn’t want to go on my own. But who knows how I will feel next year? I have to admit, even though the weather was bad that year with some rain on each of the 3 days, it is quite an experience. The weather has been sort of kind this year, except for the 23rd this month, when we experienced 3 weeks rain in one hour! Now that was a wet day!
I’ve come to a decision! Crochet is not my thing and I’m dumping my hooks (except a 3.5mm and 6mm). I can knit. I do knit. I will have a go at any knitting pattern or stitch that you care to through at me, but I totally fail at crochet. I just cannot get my head/hands around it. I’ve watched all the tutorials and even had a ‘one-to-one’ with a work colleague and I still cannot do it. It looks like the old ‘Granny knots’ we used to do when I was a kid. So I’m calling it a day. I’ll keep the two hooks I mention, as they can be very useful to pick up dropped stitches and the like, but the rest …gone!
One of R***’s problems is noise sensitivity. I understand it occurs with many Autistic people. It is not the volume of the noise, more the pitch or tone. He can have his video and computer at the highest volume level and not bother at all, but there are some types of noise that causes him distress. Fireworks are an issue. We think it is the sudden randomness of the noise, rather than the noise itself, but it is a problem for him. This then in turn becomes a big problem for us. You see his frustration turns into anger which turns into aggression. This aggression usually manifests in nipping, biting and what we call ‘chinning’ whereby he will grab an arm/leg/neck and press down with his chin onto that part of your body. When he gets it right, and he invariably does get it right, it can be extremely painful. Then it is time for the medication. To be honest though, he has coped very well with the past few days. The medication did its job.
What I get annoyed about, at this time of the year, and especially this year, is that people ‘extend’ Bonfire Night, beyond the 5th of November. I heard on the TV someone mention, that it is ‘Bonfire Weekend’ !! I also heard, on the radio young kids talk about it being ‘Firework Night’. When they were asked, why we celebrated, they did not have a clue. At the end of the day, what are we celebrating ?? We celebrate an historic event, whereby a group of people, did not agree with the Government of the day. That group of people decided to blow up the Houses of Parliament, in order to progress their cause. Today, we call that Terrorism !!!
It has been an stressful if not interesting week. R***’s medical team have decided that they need to reduce the dosage of one of his medications. To be specific, Lorazepam. He has been taking half a milligram every morning, Monday to Friday, with a full one milligram if needed (PRN). This has been working fine. However it’s been decided to try and get him off the drug completely, as it is supposed to be highly addictive. The issue here is, what will replace it, and what effect will that have on R***. We saw the effects of medication change some years ago, when a doctor decided that he would be better taking a form of Risperdone, which is an anti-psychotic drug. This caused severe problems at the time, and was stopped. I fear that the same thing may happen again. Not with the same drug, but something similar. We are going to tell his medics that we feel he should stay on the half milligram dosage, with the one milligram PRN for the time being, then gradually reduce the dosage, over a number of weeks. I will let you know how we get one, with that one.
I think I may have tempted fate, last posting with regard to Mrs H’s next project. Her hand has been forced somewhat. On Tuesday evening, I had given R*** a shower and decided that I needed one too. Now whether the shock of this was too much for the shower to bear, I couldn’t say, but the shower broke. What actually happened, I have no idea, but the controller made a cracking noise as I was turning it off, and then would not turn off. I eventually managed to get it turned off, but there were problems turning it back on. So a new shower is the order of the day. Mrs H went out and bought one yesterday, and the guy that did the kitchen said he would fit it. We just have to wait until he can, but Mrs H is already thinking we need a pump for the shower also. The one we have is gravity fed, so not much of a power shower. Apparently, a pump would improve this. Expensive days ahead, I think, as she also wants the whole of the en-suite replacing.
I’m on holiday this week. We are not going anywhere, I’m just using up the last of my leave. I have my interview tomorrow (Thursday), so fingers crossed. Neither job I’m applying for, covers what I do at the present, but if I get one of the jobs, I think I will be doing a lot of the same work. Well that’s what both my line manager and service manager think. That is what they want, and they somehow are under the impression, that I have some influence over what work I will be doing. I don’t think that will be the case. If I’m successful, I will have a new line manager and new service manager, and it will be those people, that decide what I will be doing.
R*** was a bit of a pain on Sunday. He did not want to go out with D**, his support worker. D** has not been well over the past few weeks and we suppose that R*** has got out of the habit of going. From the moment he awoke, to the moment D** arrived, all we heard was “No out with D**”…”No D**’s house”…”Poor D**”…”No out. R***’s house”. However, he did go, and D** seemed to think he had been okay. Monday, school took the class out for a walk, by the river. R*** decided that it would be a good idea, to throw his headphones into the river. So, £270.00s worth of Bose, noise cancelling headphones, were last seen floating down the river Wharfe, in Boston Spa. I am tempted to think, that it may have been a payback, but then he was out with D** on Tuesday afternoon, and came back as happy as anything. So who knows, what goes on in an Autistic mind.
Mrs Me and S**** are out tonight. They are going to see Calendar Girls at the Grand Theatre, in Leeds. It was not something that I wanted to see, but Mrs Me did, and as it is her birthday, S**** said he would go. Last report, was they were sat outside La Tasca, eating Tapas. I’m having Egg & Chips I think !!! Make of that, what you will.