Difficult day tomorrow …


The youngest goes back to his residential place tomorrow. He has been home for the weekend which he does every fortnight. He knows he is going and we think (you never can tell) that he is looking forward to it. He sits at his computer desk with his legs crossed and waits for his transport to arrive. Then it’s a quick flick through a couple of YouTube videos and he comes downstairs to go.

He has a diary/calendar that shows when he goes away and the day he returns, as one of his Autism traits is that he needs to know what is happening. If he knows, then he seems to accept things better. It’s basically an Excel spreadsheet with different coloured cells for different events.

Tomorrow is different. Tomorrow he goes, and because of the restrictions, he will not be coming home until mid-December. This is different from the last time, during lock-down. Last time we didn’t know it would happen and there was no other option. This time, we do know and we could have had the option of him staying here with us. It may sound harsh, but he is better off in an environment that we know he enjoys, with staff that enjoy looking after him. When he is home, all he wants to do is be in his room. He will not go out unless it is on his planner, so it becomes very frustrating all round. He had to go for his flu-jab yesterday, and it took us nearly an hour to get him to go. Thankfully, the nurses at the surgery know him and were aware that he might be a little late. But they got there on time and all was well. The staff at the surgery are quite amazed that he just lets them do the injection, although he is like me (another story), he has to watch the needle going in so it doesn’t make him jump.

He does not know that he will not be coming home in ‘11 sleeps‘ as his staff will explain on Tuesday. He accepted it then, and it was felt that he may not want to go back if we told him. Very difficult decision.

All good so far …


New phone seems to working well. It’s not taken too long to get used to, but I’ve not used all the features yet. As I thought, I needed to get a new, smaller sim card. Fortunately, we were going to Harrogate on the day New Phonemy phone was due to arrive. I thought it would be a good idea to call in the phone shop and ask for a new sim. I explained that I was picking up my new phone later and it needed a new card. The salesman tried to upgrade my plan, but when he looked at the details he agreed that I couldn’t get a better plan for the money. He then took a few security details and was able to validate and authorise the new sim ‘to save me time later ‘ he said. Now that was a mistake! When he validated my new sim, it automatically invalidated the old one. That meant that when I checked my email, I was charged for the data, as although the card was invalid, the account wasn’t. It was only a small charge, but I was a little bit miffed.

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Because both K*** and me are classed as carers, we are entitled to a free flu jab every year. I think also that since my MVR operation, I would be classed as being in a ‘vulnerable group’. It would seem that flu can have a serious effect on a person with a heart condition. R*** accepted the injection without any fuss and was even smiling  when the nurse pushed the needle into his arm. K*** thinks it was because he could see what the nurse was doing and that he remembered it from last year. Like me, he likes to watch the needle go in. I always try to watch because that way, it does not make me jump. Many years ago, when I was a blood donor, I had a bad experience with a needle. I was in the transfusion clinic which I had been doing every six months for years. I was looking around the room when the doctor inserted the main needle into my arm. I was not expecting it and it startled me a little. This reaction made the needle go into the vein too far, and instead of laying in the vein itself, it pierced the other side and from what I was told, blood was escaping into my arm. This resulted in a small haematoma forming. I was assured that it was not dangerous, as they had caught it in good time, but they said it could have been a lot worse. Ever since then, I’ve tried to watch for the moment the needle enters and I don’t have a problem.

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