It’s been three weeks since my last post, and there have not been any real reasons why. I’ve just been a little bit lazy I suppose. I don’t like writing when there is a chance of being disturbed and with the problems we are experiencing with our youngest son, sitting and putting fingers to keyboard has not been the top of my to-do list. I think I’ve explained here before that Rh*s is Autistic and has several other linked conditions. One of the issues many Autistic people have is routine. Things have to be the same with little or no variation. Rh*s likes to know what he is doing, where and when he is doing it and who with. Changes, even the slightest can lead to anxiety and stress, which often manifests in his behaviour. He currently lives at his residential placement for 4 nights and 5 days a week. He is picked up from home Monday morning and returns Friday evening. It’s taken a long time to get to this stage, and he appears to be happy with the arrangement. He has his own flat and many staff to support him on a daily basis. However, it is now the time to plan his placement for the next year, and this is causing some issues.
I create a planner that shows the nights he sleeps at his flat and the nights he doesn’t. This planner is on his bedroom wall at home and one of his walls at his flat. The current planner ends on the 31st December this year. Since the middle of June, he has been ‘worrying’ that he is not going to his flat next year. Before he can see his dates we have to run it past the representative, of the people who funds his placement and this is where there has been a stumbling block. We believe, that as his placement is fully funded for 24/7 care, that the funders are going to insist on him going 24/7. We, as parents, and the support team do not think he is ready for this yet and we may have some arguments to overcome in the next couple of weeks. The uncertainty has come out in his behaviour, to the extent that he is not wanting to do some of the activities that we know he enjoys. He has also taken to ‘chanting’ about his dates. Every so often and at the moment it seems to be every hour or so he will recite “Friday, Saturday, Sunday” for every weekend up until the end of 2020. This is basically, we think is his way of asking “What am I doing next year?” We think he can actually picture his calendar in his head, rather than actually remembering the dates.
We were supposed to be meeting with the representative for a review of Friday, but the person had got some crossed wires and did not turn up. The meeting has now been rescheduled for early October, but this does not resolve the issue we have. What we and his care manager are now thinking, is that we just go ahead with the dates we are looking at, and if the funders are not happy with that, the issue will be taken to an advocate to speak for him in what they call “Best Interest”. From what I understand this advocate will look at what each party thinks is his best interest and make a decision. Could go either way, but I think that parents and carers know what is best for him more that someone sat at a desk with a financial spreadsheet in front of them. Gong to be a stressful couple of weeks.
For a few months now, I have had a problem with my calendar. My primary email account is a Gmail account, and the application that use to read and write my email is Outlook 2016. Here was the problem! Outlook has its own calendar, but I can only see that calendar on my laptop as that is where the data is saved. My tablet and phone cannot pick up that calendar, but can see my Google calendar. So, my work around was to have an application that synchronised both calendars. After much ‘Googling’ I such an application and it was successfully installed. It ran without issues for a good few weeks, but then I noticed that although it said it was synchronising, it wasn’t happening. It was assumed by the software company that produced it, that the latest Windows update was causing a problem. There was no apology or offer to investigate it was just ‘A Windows 10 issue’ and was left at that.
Much more Googling and expressive language followed, before I found the next answer …add my Google calendar as an Internet Calendar in Outlook and use that one only. Brilliant …and so easy to do. Job done and me now a happy man. But wait a minute, I don’t seem to be able to delete an entry from that calendar. What is going on? It seems that the Google calendar is read only in Outlook. I’m now beginning to lose it a little bit. More searching and another application is found. This one seems to work. It synchronises every hour, I would prefer every 15 minutes but can live with the hour restriction. Back to the ‘happy man’ status again. I then notice, that my Outlook calendar is showing duplicated entries! My language is getting worse. I looked at some of the help forum and it explains that this is one of the issues and the only way around, is to delete all entries from both calendars and re-enter them in one calendar only. Not going to happen. I have now consigned that application to the recycle bin along with the others.
So I’m now left with the only option I appear to have. I use the Google calendar and have it as a read only calendar when I’m using Outlook. Not ideal, but seems to be the only thing I can do.
I’m on holiday this week. We are not going anywhere, I’m just using up the last of my leave. I have my interview tomorrow (Thursday), so fingers crossed. Neither job I’m applying for, covers what I do at the present, but if I get one of the jobs, I think I will be doing a lot of the same work. Well that’s what both my line manager and service manager think. That is what they want, and they somehow are under the impression, that I have some influence over what work I will be doing. I don’t think that will be the case. If I’m successful, I will have a new line manager and new service manager, and it will be those people, that decide what I will be doing.
R*** was a bit of a pain on Sunday. He did not want to go out with D**, his support worker. D** has not been well over the past few weeks and we suppose that R*** has got out of the habit of going. From the moment he awoke, to the moment D** arrived, all we heard was “No out with D**”…”No D**’s house”…”Poor D**”…”No out. R***’s house”. However, he did go, and D** seemed to think he had been okay. Monday, school took the class out for a walk, by the river. R*** decided that it would be a good idea, to throw his headphones into the river. So, £270.00s worth of Bose, noise cancelling headphones, were last seen floating down the river Wharfe, in Boston Spa. I am tempted to think, that it may have been a payback, but then he was out with D** on Tuesday afternoon, and came back as happy as anything. So who knows, what goes on in an Autistic mind.
Mrs Me and S**** are out tonight. They are going to see Calendar Girls at the Grand Theatre, in Leeds. It was not something that I wanted to see, but Mrs Me did, and as it is her birthday, S**** said he would go. Last report, was they were sat outside La Tasca, eating Tapas. I’m having Egg & Chips I think !!! Make of that, what you will.