Glad that’s over . . . hopefully


The past ten days or so have been a bit stressful, to say the least. It started on the Monday when my father-in-law was rushed into hospital with suspected pneumonia. My wife stayed with him until 3am on Tuesday, in the A & E department, hoping to get him onto a ward. That didn’t happen until Tuesday evening. Then on Wednesday, in a bizarre twist, my Mother was rushed into the same hospital with the same suspected condition. She too was left in A & E for over 19 hours until a bed could be found. The staff, what little there was, were brilliant and did all they could with the limited resources available, but unfortunately, they tend to bear the brunt of patient and visitor frustrations.

They are both out now and on the mend, hopefully.

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Another bit of stress came when our youngest came for a home visit. He has an obsession with Mickey Mouse and his flat, at the care home has many pictures and wall stickers of this cartoon character. Towards the end of July, he came for a visit. He came with a request for “51 Mickey Mouse stickers!!” He was able to show me the ones he wanted. They were located in South Africa and at a price of 1900 Rand (plus postage), but I managed to explain that they were too expensive, as it worked out to around £100. He accepted this, but almost immediately ask for “4 Mickey Mouse stickers.” He then showed me the new ones, and I agreed to get them.

That’s when the problem started. The seller was on holiday and wouldn’t be back until the 16th of August. He seemed to accept this, but then the nattering began. He was asking everyone for “4 stickers.” We managed to order them eventually and told him that they would be arriving at his flat on Monday 22nd. All was going well but then a new phase came in. He started asking for “16 stickers on Tuesday!” Nobody had any idea about these new stickers, but he kept mentioning them.

The stickers finally arrived on the 23rd and he is very happy with them. It was later that day when it suddenly struck me where the “16 stickers on Tuesday” had come from! I had told him about the seller being on holiday and had said I would order the stickers when he came back … the 16th of August, which was also a Tuesday. I am convinced, that in his Autistic mind he was checking that the stickers had been ordered on Tuesday the 16th!

Strange and scary . . .


It started Saturday morning. I began to notice a slight ache across my chest. I thought it was the result of coughing and that I had strained some muscle. However, it seemed to get stronger slightly as the day went on. By around 6:30, it was a lot more noticeable, but I still put it down to the previous coughing.

Went off to bed around 11:30 and the ache had now become a pain. I was now beginning to wonder what was going on. I couldn’t sleep or get comfortable and went downstairs to get a warm drink. My wife followed asking what was wrong. I explained about the pain, which was now much worse. We decided that we needed to call someone, as I was beginning to think along the Heart Attack lines.

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K**h called the Ambulance Service and they arrived within about 15 minutes. The Paramedic and his partner were amazing. He asked a lot of questions and then wired me up to his portable ECG machine. He explained that he would do three scans to check the readings were all correct. After a quick study of the print-outs, he declared that he was convinced that I was suffering from Atrial Fibrillation and his partner quickly agreed.

Then the scary bit came, when he said, “Right let’s get off to the hospital!” Neither I or K**h knew what to say. It certainly wasn’t what I expected to hear. I’m not sure what I expected, maybe a tablet to put under my tongue (not sure what that does, but I had heard of that) and advice to see a GP. But the hospital was not on my radar at all. We asked what I should take and he joked that all I needed was a phone and a good book.

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The next thing I knew, I was strapped to a trolley and we were hurtling along the roads to Harrogate. With blue lights flashing, as the paramedic wanted to get me there quickly, we soon arrived at the A & E of Harrogate district hospital. Things moved quite quickly. After the usual blood taking and a chest X-ray, I was found a bed in a Critical Care ward. All in all, about 45 minutes.

I was hooked up to a full ECG monitor and was placed on oxygen as my saturation levels were low. Well, sleep was out of the question! The ECG machine was constantly beeping as my heart rate changed and if you have ever had the cause to use a Nasal Cannula then you will know how uncomfortable they can be when lying on your side, trying to sleep.

I was in my own room, and there was nobody to talk to. The door was kept closed as there was a patient with dementia, that was trying to go home and would go into the rooms if the door was open. I had a full day and night of this before a doctor decided that I should be on a Cardiology and not Critical Care. I was moved to another ward at 8pm. This time it was a five bedded ward, with four other patients. Although they were all around my age, they were all local people talking about local issues. Not as boring as before, but I had nothing in common with any of them.

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I now had a portable monitor which was linked by wifi to somewhere. This meant I was mobile and didn’t have to unplug anything to go to the toilet. I was still on oxygen though. Monday night passed without any issues and I found that I had slept for about six hours.

Tuesday was as boring as the other two days. For some reason, televisions are not on any of the wards. Something to do with the licence fee which I didn’t understand. So the only entertainment we had was a small radio playing music from a local radio station.

Later in the afternoon, a different Cardiologist saw me and explained that the increase in one of my medications had regulated my heart rate enough for me to go home. Hopefully that day. However, my blood oxygen levels were not good enough and I was to stay another night.

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Wednesday morning came and the nurse that was taking my blood pressure and oxygen levels told me to take really deep breaths when the oxygen was checked as that increased the levels. She also told me that I should regularly take a couple of deep breaths throughout the day as a matter of course.

The Cardiologist came again and explained that all the signs were good and that I could go home that day. This was around 10am. I now had to wait for my new medications. The Pharmacist turned up at around 1pm and took some details about the medication I had at home. She explained that she would put the prescription in and that as soon as it was ready, I could go.

I called K**h and explained that I was waiting for my meds and I would call her again when I had them. It was 4:30pm before the Dispensary called the ward to say my stuff was ready. It annoyed me that with all the bed shortages around, I was taking up a bed, whilst waiting for someone to fulfil my prescription.

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It was getting on for 6pm when we finally got home, and I have never been so happy to see the house again. It had been a scary episode and has given me cause to ponder on life, work and things.

Are coincidences real . . .


I certainly hope so, and here’s the story.

Yesterday, our youngest son was admitted to St James’s Hospital in Leeds. It was a planned procedure called Cross-Linking. Basically it involved ‘scraping’ a layer of the cornea of both eyes to reshape it. It is not a pleasant procedure when you hear it, but it apparently the least invasive. However, because of R***’s autism, he needed full sedation and all the risks that come with that.

All the time before, and after the procedure we kept reassuring him, by telling him that he was a star. We didn’t have to wait too long for his theatre slot which was a blessing, as he doesn’t cope well with waiting. He is still getting over the anesthetic and it is difficult trying to stop him from rubbing his eye, which could lead to infection.

So now the coincidence! Today, at Wetherby racecourse is a horse running called “St James Star”. It is running in the first race at 14:10, which is about the time that R*** went into theatre. As Wetherby is our local racecourse, I got to thinking it is worth have a small wager.

I shall update after the race. Fingers crossed.

** Update – the horse came second **

A little bit pear shaped …


Last week, K*** suddenly noticed that she could see ‘floaters’ out the side of one eye. She had just started a new prescription for her contact lenses and thought at first it was that. But it got worse and she was experiencing a bad headache. Called the optician on Friday, who told her to come straight away. They sent her to the eye-clinic at the hospital, and it seems that the gel that surrounds the eye had become damaged, causing a bleeds at the back of her eye. They told that it should just clear up in the next few days, but she has to go back in a fortnight for check. Now, it would have hard anyway, but we had invited K***’s parents for lunch that day and we couldn’t really put them off. So I was ‘entertainments officer’ for the day. K*** thought she would be home by half past one, but it was nearer five when she got back.

To top it all, whilst I was out on Monday, I think the wind got into my eye, as that has been sore since then. Feels swollen and is a little uncomfortable when I blink, but not to the same extent as K*** has suffered.

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My laptop has started to play-up a little. It’s seems to have been happening since the last major update to Windows, but I think it is just a coincidence. What is happening is that my Wi-Fi connection dropping out. Does not happen to any of the other devices we have connected though which kind of proves it is not the router. My other Windows 10 machine does not have the issue (although I don’t had it powered up as much) which may be another pointer away from the issue being down to Windows update. I did Google the issue, which led to a lot of possible reasons. The main reason seemed to point to an issue with the network card in the laptop. I’m awaiting a reply from the manufacturer as to what can be done, but I’m of the opinion, that I may have to live with it. I can connect directly with an ethernet cable and it’s not too inconvenient, but I will see what happens.

The issues with K***s emails reoccurred again yesterday, just over a month since the last time. The mail app on her iPad stopped  delivering any emails. They could be viewed on the website but were not being ‘pushed’ the the mail app. I could not get them on my laptop, which was the same as the last time. Turns out, that it was an issue with Yahoo (Sky email provider) which was exactly the same as last time. No-one at Sky or Yahoo seems to care about it. Both say they are sorry and are working on a fix. Maybe it’s time for Sky to have a rethink!

(Update: emails on her tablet are now coming through. some 24 hours after the issue started. Not good)

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Well both K*** and R*** are still in bed, and I think I’ll let them sleep longer. R*** has been a star over the past two days. I don’t know, but he seems to kind of know when K*** is not well and it tempers his behaviour for want of a better word. We have has no issues with him at all, not even when my laptop dropped the Wi-Fi.

I’m just going to start on the ironing , which shouldn’t take too long. I actually love ironing and have sort of ‘adopted’ the job as my own, which suits us both. Someone once told me that we all have some minor Autistic tendencies, and I think ironing must be one of mine.

 

Back on track … hopefully


My INR results came back today, and it had gone down to 2.7, which is around about the target date. The anti-coagulation clinic still wants me to be checked in a week, but strangely they have requested that I be tested on Wednesday instead of the more usual Tuesday. It’s not a problem changing the date, as Tuesday has always had issues with work. Only thing that concerns me is that is now the middle of the week, which could have implications when we have time away. However, we shall cross that bridge when we come to it.

Tomorrow sees me paying a visit to the Cardio-Respiratory unit for an ECG. I’ve not had one of these since before I had my operation, and I’m more bothered by how I can get parked than what the results will be. This is a pre-cursor for the appointment with the doctor (or Consultant as I like to think of him) next week. I’ve not seen Dr Me****y since before the procedure back in March 2014. I would have thought I would have seen him before this, but I think there has been some mix up with my post-care appointments over the past two years. It will be good to see him again

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From his ‘homebook’, R**s seems to have had a reasonable day. There had been a couple of issues at the beginning of the day, due to a delay in getting in to the unit, but they say it improved during the day. It was a little unusual, but he was apparently wearing his ‘weighted blanket’ in the taxi home. He came out of the taxi in a happy mood and seemed okay. Around about 7ish, K**h took him his usual meal and he seemed to snap, which we were not really expecting. The usual nipping occurred and it required a dose of his PRN medication. He calmed down after about 15 minutes, but one of the after effects is to reduce his hunger. So not much dinner tonight.

He is full of cold, and I think that has had an effect, but he seems a bit more settled now.