The title refers to the Christmas staff night out. Just after the last night out in September, I ‘predicted’ that the date would be the 18th of December, which is the last Saturday before Christmas. The manager confirmed that the 18th would be the night. Over the past years, our youngest has been at home on the nights they have chosen, which gave me the perfect reason not to go. As I have explained before, I’m not one for social events and dislike eating out with a number of people, that are not family.
With the youngest (RH) now only coming home every fortnight instead of weekly, the 18th falls on his weekend away. Hence ‘no excuse this time.’ It was okay last time, but this time it will be a little different. Two of the people that I got on well with, have now left and won’t be going, but the three people that I cannot stand are still there and will be invited. All the others, I can take or leave them.
It looks like we will be going to the local Italian for their Christmas menu, then on to a local function hall for a ‘Disco’! I think I can just about manage to cope with the meal, but dancing !!! Not these days.
Thursday was a difficult day. It was the day of the youngest son’s funding review. For the past 10 years his placement has been fully funded by Continuing Health (CH). It’s part of the NHS that provides social care for adults who need full time care and assistance. There are now question that are being asked is whether CH should be fully funding this or whether the Local Authority should part fund the placement. This meant, that we had to got through a process called the Decision Support Tool or DST to identify who funds what.
It was very distressing, as RH has not ‘got better’ he is still Autistic and still needs the support he has been getting. What is different is that since the pandemic started RH has become a lot more receptive to changes that have occurred. This has been mainly down to the core team that work with him. The things he has done with them would not have seemed possible five years ago.
He has been to Centre Parcs for a few days, then a week ago he was at LegoLand, Brighton and walked the street of Central London, which was amazing.