The new “Garden Cupboard” is built and in place. It is a lot bigger than I expected and not as stable as I think it should be. The location where I sited has a slight gradient to it so I thought that I needed to raise one end up on bricks. That might not be the case as it seems that the floor has a bit of give in it. This means that with being raised up a little at one end, it is a little difficult to close the lid properly. I have a shelf to fasten in yet which should help with the stability, so we shall see what happens then. The shelf that I’m using is the side of an old cabin bed that the eldest used have in. He grew too tall for it and we had to get him another and as I’m a bit of a wood-nerd, I refused to throw any wooden parts away. I knew they would come in useful someday.
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The youngest is back from his midweek respite this afternoon. His usual lead carer has left to work elsewhere and this could have serious repercussions for everyone. K*** is quite worried about it. The lead carer he had was very good with him and knew all his quirks and ways. One of his ‘quirks’ is when he is asked if he wants to do something. They are big on personal choice, but with R*** you have to expand the choice range. For example it is no good saying “R*** do you want to go shopping?” as he will invariably respond with “No shopping!” That “No” response would mean he never actually take part in any activity as it would always be ”No…” We found out over the years that you have to give him a choice of two things. So instead of saying “… do you want to go shopping?” the question would be something like “R*** do you want to go shopping or go for a walk by the river?” That type of question will always receive a positive response to either one of the two choices. So in actual fact he is getting more choice not less.
It is that kind of thing that they don’t all seems to get their heads around, and it is a worry. The next few weeks are going to be a challenge, especially as from the beginning of July his respite days are to increase. There is going to be a lot of crossed fingers in this house!
I love that R has a choice with the this or that option. Really, that is a great idea, and how can the other carers not get it, it seems logical after what you wrote. Fingers crossed they get it and he continues to have valuable respite.
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